The Glade 4.0

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 Post subject: This month
PostPosted: Fri Sep 29, 2017 6:25 pm 
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Rihannsu Commander

Joined: Thu Sep 03, 2009 9:31 am
Posts: 4624
Location: Cincinnati OH
This month has been a pretty shitty one. In fact i pretty well had the worst week of my life and I’m still reeling from blows. Tried to avoid ranting but what the ****.

September started with my daughter complaining about trouble swallowing/breathing and a lump on her throat. She ended up at the doctor and they did a CT scan which showed she had a large mass in her throat/chest which the doctor suspected was cancer.

About that time I came down with shingles which took me out of commission for a couple of weeks. That Friday the doctors came back with a preliminary diagnosis of thymic carcinoma.
Monday my employer laid my entire team off.

The last two weeks I’m scrambling to find a job while managing my rising panic about my daughters diagnosis. We had a surgical consult on last Friday and were told we really have no options but surgery . The tumor was pressing against the aorta and her vena cava.

The good news was no detectable metastasis but none of the blood tests were consistent with lymphoma (a much more treatable form of cancer.)

Yesterday was another hard but good day. The surgery turned out 90% good news, 10% bad news. Dispite all prior evidence to the contrary, she does “just” have Hodgkin’s lymphoma. The surgery got almost all of the tumor but because lymphoma responds so well to chemo they did not risk damage to the heart/veins/arteries. My daughter probably won’t graduate (it’s her senior year) because she is facing 3-4 months of chemo.

But she survived the surgery. That’s the important first hurdle. Hodgkins has >80% cure rate. (That seems horribly low to a father, but it’s lightyears better than the carcinoma survival rates)

So now I just have to finish recovery from shingles before chemo knocks out her immune system and find a new job in a market where GE just flooded the market with Unemployed IT pros.


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PostPosted: Fri Sep 29, 2017 9:42 pm 
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I got nothin.
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Joined: Thu Sep 03, 2009 7:15 pm
Posts: 11144
Location: Arafys, AKA El Müso Guapo!
Ugh. That's a shitfest.

Heal well to you and your kiddo.

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PostPosted: Sun Oct 01, 2017 7:16 pm 
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Deuce Master

Joined: Thu Sep 03, 2009 9:45 am
Posts: 2966
Man, that's rough - sorry to hear that. But you're right: it's lucky she has Hodgkin as opposed to the non-Hodgkin variants. Much better prognosis with the vanilla. Did they say what subtype she has (nodular sclerosis/lymphocyte rich)? If you want any forms of reading on the diagnosis or chemo drugs, just let me know.

Shingles spreads by respiratory droplets, btw, so it might behoove you to wear a mask whenever you can.

Best of luck on both fronts. I hope both of you recover swiftly.

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PostPosted: Sun Oct 01, 2017 8:03 pm 
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Rihannsu Commander

Joined: Thu Sep 03, 2009 9:31 am
Posts: 4624
Location: Cincinnati OH
Nodular Sclerosing Hodgkins Lymphoma, stage 2a is the official diagnosis pending a bone marrow test tomorrow morning. They’ll upgrade to 2b if the marrow test is positive.

Because of the location of the tumor they had to crack her sturnum and treat this like open heart surgery (she had a thoracic surgeon and a cardiac surgeon doing the surgery)

The downside is that because chemo affects bone regrowth they don’t want to start chemo for a while. (4 weeks) on the other hand the oncologist wants no more than 2 weeks. The surgeon and the oncologist are hashing out the optimal timing.


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PostPosted: Sun Oct 01, 2017 9:03 pm 
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Deuce Master

Joined: Thu Sep 03, 2009 9:45 am
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I see. That's the most common form of Hodgkin lymphoma, so at least there should be very few curveballs getting thrown at her doctors. I'm sure they will take excellent care of her, but if there's any information you need, let me know and I will get you whatever I can.

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PostPosted: Mon Oct 02, 2017 8:30 am 
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Rihannsu Commander

Joined: Thu Sep 03, 2009 9:31 am
Posts: 4624
Location: Cincinnati OH
I’m lucky enough to have a mother who’s an OB/GYN and a cancer survivor herself so she’s been a big help with research and asking questions we don’t know to ask.

We’re also a family that BEATS cancer. my father, mother, both my grandfathers have all had cancer ( several of those people have had multiple unrelated cancers) and are all still kicking it 15+ years later


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PostPosted: Mon Oct 09, 2017 4:24 pm 
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Mountain Man
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Joined: Thu Sep 10, 2009 4:15 pm
Posts: 3373
Wow, I'm late, but good luck, man. Sorry to hear about the crap, and I hope it gets better.

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Is all I`ll ever know
So when you get to heaven
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PostPosted: Sun Oct 22, 2017 11:31 am 
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Joined: Fri Sep 25, 2009 8:22 pm
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Jesus, that's rough. Hopefully things improve dramatically.

Remember to take care of yourself in the process. Seen too many times cases where people neglect themselves. Can't help your daughter if you go down and out.


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